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One in 10 of the 250,000 Australians living with epilepsy experience a seizure-related injury each year, many of which can be life-threatening, according to an article published in .

The most commonly reported seizure-related injuries sustained by those living with epilepsy include head (one in four of which require stitches), water immersion (almost 26%), driving (14%), burns (14%), fractures (10%) and dental-related injuries (10%).

According to co-author and Consultant Neurologist and Epileptologist Dr Kaitlyn Parratt at the Royal Prince Alfred 黑料吃瓜群网 and Sharp Neurology, Sydney, experiencing even one seizure a year can pose a risk for serious injury.

鈥淎 seizure is the result of abnormal, excessive or recurring electrical activity in the brain, noting there is tremendous physical risk associated with experiencing seizures,鈥� she said.

鈥淥ne in three Australians living with epilepsy will sustain a seizure-related injury in their lifetime, more than 50% of which will prove particularly dangerous to the head, or will occur at home in the bath or swimming pool.

鈥淎ustralians living with epilepsy are at 15 to 19 times greater risk of drowning than the general population, and are also at risk of sustaining a range of other injuries, including burns, serious fractures, dislocations and car accidents.

鈥淚t is therefore vital we improve community understanding of the physical dangers faced by those experiencing epileptic seizures and educate people on how to react in the event of a seizure, to help maximise patient safety,鈥� Dr Parratt said.

The launch of 鈥� a UCB-led community engagement initiative 鈥� is designed to highlight the much-needed support available to those living with epilepsy and their carers while raising awareness of the brain disease.

CEO and Managing Director Carol Ireland hopes improving awareness of epilepsy will serve to address the abundant myths and misconceptions surrounding the disease.

鈥淭here are many common myths and misconceptions involving epilepsy. Epilepsy is something everyone has heard of, but that鈥檚 usually the extent of their knowledge. Some people think it鈥檚 psychiatric in nature, but it鈥檚 certainly not. It鈥檚 very physical.

鈥淭hat鈥檚 why the Look for epilepsy initiative is so important, because it allows our community to raise awareness of epilepsy and reinforce the much needed support available to those in need,鈥� Ireland said.

Study co-author and neurologist, epileptologist and epidemiologist Associate Professor Wendyl D鈥橲ouza from St Vincent鈥檚 黑料吃瓜群网 in Melbourne is supporting the Look for epilepsy initiative, hoping that new and improved ways of predicting seizures will reduce risk factors for Australians living with epilepsy.

鈥淐oncerningly, people living with epilepsy have a mortality rate of up to three times higher than the general population.

鈥淎 frequent cause of epilepsy-related death is Sudden Unexpected Death in Epilepsy (SUDEP), where sudden death occurs in a person with the disease for no apparent reason,鈥� D鈥橲ouza said.

鈥淗owever, according to emerging Australian research into seizure patterns, while long considered to be unpredictable, there is, in fact, a person-specific, long-term pattern to seizures in most (80%) cases,鈥� Associate Professor D鈥橲ouza said.

鈥淭he ability to forecast when someone may be at high risk of seizures through wearable devices, for instance, may help to reduce uncertainty and allow for the implementation of preventative strategies to minimise the risk of physical injury and SUDEP.鈥�

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Amy鈥檚 story

Passionate cellist and Sydney Conservatorium of Music student Amy, 20, was diagnosed with epilepsy in 2017 and understands the severe physical and mental toll of experiencing seizures. She predominantly experiences absence seizures, during which she blanks out or stares into space for 2鈥�10 seconds.

During a high-intensity interval training session at the gym one day, Amy experienced her first and only tonic-clonic seizure, involving loss of consciousness and alternating stiffness and jerking. She fell off the treadmill and hit her head hard on the ground, later learning that hyperventilation from overexertion was one of her seizure triggers.

鈥淟iving with epilepsy is very challenging, both physically and mentally. The disease affects my memory and the seizures make me very tired.

鈥淚 love to run, snowboard and swim, but I鈥檓 always worried that having a seizure could cause me to fall, hit my head or even drown,鈥� she said.

鈥淚f I鈥檓 crossing the road while having an absence seizure, I could literally freeze for up to 10 seconds and a car could hit me.鈥�

Fortunately, armed with the invaluable care and support from her family, neurologist and anti-epileptic medication, Amy has been seizure-free for the past 14 months. She is not, however, free from the strong, relentless shackles of uncertainty involving recurrent seizures.

鈥淢y friends see that I鈥檓 seizure-free and think my epilepsy has gone and I鈥檓 fine now. What they often don鈥檛 realise, however, is just how much of my life epilepsy continues to consume.

鈥淚鈥檓 calling for people to recognise the seriousness of epilepsy, the dangers of seizures, and the daily physical and mental challenges faced by people like me,鈥� Amy said.

Image credit: 漏stock.adobe.com/au/mjowra