New trial hopes to improve care for rare cancer
Wednesday, 12 January, 2022
A -led project trial aims to improve care for people with neuroendocrine tumours (NETs).
The trial will establish the effectiveness of a shared-care model, shifting follow-up care for those with NETs away from acute hospital settings and maximising the involvement of local health professionals, including the patient鈥檚 GP.
鈥淣euroendocrine tumours are rare cancers that affect fewer than 1 in 5000 Australians, but those who live with them suffer from a lot of distressing symptoms and treatment side effects and the current health system can鈥檛 always meet these patient needs,鈥� said Professor Raymond Chan, Director of Flinders University鈥檚 Caring Futures Institute, who will lead the trial.
鈥淔urthermore, specialist-only care cannot always sufficiently meet all patient medical needs, and the current system does not allow for the involvement of GPs and allied health professionals.
鈥淲hat our model will do is to treat people away from specialised cancer centres, in some cases reducing the need to travel, and instead shift the care to a multidisciplinary healthcare team, including the patient鈥檚 specialist team, general practitioners, practice nurses and community allied health practitioners.鈥�
The trial, known as AUS-NET, will involve 504 people currently receiving treatment for NETs at five cancer centres of excellence in South Australia, New South Wales, Victoria, Queensland and Western Australia.
While shared-care models have been implemented previously for more common cancer types including breast cancer, colorectal cancer, prostate cancer and lymphoma, this will be the first trial to test it on the management of rare cancers, with the care model not currently undertaken anywhere in Australia or around the world.
Professor Chan said, 鈥淲ith mounting pressure on our acute care and hospital system, beyond the issues we鈥檝e seen during the pandemic, capitalising on the expertise of primary care is one key strategy for ensuring the sustainability of our health system.
鈥淭he knowledge generated from the trial will inform healthcare policy and transform the way people with neuroendocrine cancer, and in the future other rare cancers, are cared for,鈥� Professor Chan said.
The project, Implementing a Nurse-Enabled, Shared-Care Model to Address Unmet Needs of People with Neuroendocrine Tumours: the AUS-NET trial, has been funded by the Medical Research Future Fund鈥檚 Rare Cancers, Rare Diseases and Unmet Need Grant Opportunity scheme.
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